Read a Story
Personal stories can remind us that the SCA journey may be different for each person, but no one is truly alone.
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YOU ARE NOT ALONE
Our Community
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A place to connect, share and stand together with people who understand that an SCA diagnosis affects far more than one person.
CONNECTION MATTERS
No one should have to navigate SCA alone.
Whether you are living with SCA, caring for someone you love, seeking answers for your family or simply hoping to understand, connection can make a real difference. This community is being built as a welcoming place for honest conversation, reliable information and shared hope.
WAYS TO CONNECT
There is a place for you here.
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Share awareness, support research and help create the kind of connection that moves hope forward.
Discover Ways to Help ›Learn About SCA
Clear, respectful information can help people and families ask better questions and find a way forward.
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A COMMUNITY IN THE MAKING
Built from voices, not just information.
The SCA Awareness Fund is beginning with education, awareness and stories. Over time, we hope this space will grow into a place where people can find encouragement, resources and meaningful ways to take part.
Every person who shares a story, starts a conversation or supports the cause helps make that future possible.
STRONGER TOGETHER
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